Poster 5
SSBP Research Symposium 2023
Engagement in a behavioral intervention for toddlers with tuberous sclerosis complex
Presenting Author : Carly Hyde
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2024 SSBP Conference
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The Society for the Study of Behavioural Phenotypes (SSBP)
The Society for the Study of Behavioural Phenotypes (SSBP) is an international, interdisciplinary research society for studying the development, learning and behaviours of individuals with genetic disorders and ways of helping to improve lives. The society is registered as a charity in the UK (No. 1013849) and was set up in 1987.
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2 Comments on “Poster 5”
Nola Chambers
15th September 2023 at 5:40 pmVery interesting poster, thank you Carly! We also found remote caregiver coaching of caregivers of children with autism during / after COVID very difficult to sustain for many families, particularly those with full-time working moms.
Carly Hyde
15th September 2023 at 8:46 pmThanks for your comment, Nola! Unfortunately, we definitely saw more attrition during COVID across studies, especially for the busiest parents. We have a newer iteration of this study which includes a materials-only control group, and it’ll be interesting to see whether this type of intervention delivery with fewer daytime appointments will be more amenable to working parents.