Williams syndrome (WS) is a rare genetic syndrome (1 in 18,000 life births) that results in an uneven cognitive profile and intellectual disabilities, in addition to a specific behavioural and physical profile. This profile of complex needs may make it challenging to support children with WS in schools and many individuals with WS have poor educational outcomes. In this talk I will discuss what we have learned about WS through a multi-lab collaboration to build a large cross-sectional and longitudinal database on cognitive development in WS (WiSDom) as well as research that has examined the issues related to educational provision for individuals with WS. I will present how we have co-created two sets of educational guidelines with teachers as well as young individuals with WS themselves and what the theoretical implications of this process has been. Finally, I will highlight future research priorities to raise educational outcomes in individuals with WS (and other neurodevelopmental conditions.

Keywords: SEN, Williams syndrome, mathematics, education, educational outcomes